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  • 31 Mar 2019 6:59 PM | Anonymous

    The Patient from Diagnoses through Post Surgery Recovery

    We have found through talking to many patients over the nineteen years from my esophagectomy that knowledge of what lies ahead is very important to the patient and their families.

    We believe that patients who have knowledge and acceptance of the esophageal cancer process will produce better outcomes if they are aware of what lies ahead of them.

    We believe that a patient will be more prepared for the surgery if he or she knows what will happen when they wake up in recovery.

    We believe having a patient who has gone through the surgery at the same hospital can provide guidance and bring the patient to a comfortable level with what lies ahead and this, we believe, will produce a better outcome for that patient.

    How do we identify that patient who has the experience and intelligence to be able to convey that information to a newly diagnosed patient? The key element is the ability to convert the question being asked by the newly diagnosed patient into an experience that the patient advocate has experienced.

    As an example, when a newly diagnosed patient asks, how will my pain be after the surgery? My response is when I was in the hospital the nurse came in each morning and asked me to rate my pain from 0 – 10. They wanted me to walk a mile each day and do breathing and coughing exercises, so my pain level had to be in the middle to lower half of the scale for me to be able to do all those exercises.

    Another question often asked is what will my quality of life be after the surgery? I respond to that question by saying to the patient, that I now play golf 3 times a week, and I can go out for a meal with family and friends. I may not eat all my meal, but that is what they make doggy bags for.

    Well the question now is, how do we identify the patient who can come back and walk the journey with that newly diagnosed patient.

    My wife, Ginny, and I formed the Esophageal Cancer Education Foundation (ECEF) in part: To walk the journey with patient who have esophageal cancer.

    One of the services we provide to patients and their caregivers is a Conference Call Support Group Meeting. Patients from all over the country will call into a given number and access code to join in and participate. We meet once a month on a given evening for about one hour to discuss various issues that the patients are experiencing. With the help of two surgeon’s we have on the call, we will address the issues presented. This meeting gives patients an opportunity to see what other patients are experiencing and we find that it is a good help to all who attend. It gives them the feeling that they are not alone in this post-surgical journey and that they have a place they can go to address what they are experiencing and get good advice. WE need a disclaimer that says in part that all discussions had on the conference call must be cleared with their own surgeons and only act on their Doctors direction.

    From these meetings we will be able to select a patient who can be the patient advocate that can talk to patients on a pre-surgery basis.

    For more information contact:

    Bart Frazzitta
    President & Co-Founder
    Esophageal Cancer Education Foundation
    PO BOX 821
    Manalapan NJ 07726

  • 01 Aug 2018 4:18 AM | Petra Feistl (Administrator)

    The International Society for Diseases of the Esophagus is looking for members who are visionary, passionate and committed to step into a more active role as a member of an ISDE Standing Committee.

    Join a group of dedicated specialists including physicians, surgeons, basic scientists and other health professionals who are working toward making ISDE the world leader in development and dissemination of information about the esophagus.

    ISDE Standing Committees

    The following standing committees are accepting members:

    • Education Committee
    • Guidelines Committee
    • Biennial Congress Committee
    • Membership Committee
    • Research & Development
    • Web Committee

    The duties of committee members vary by committee. Please review the ISDE Committee Members Expectations & Requirements document for more information.

    Task Force and Ad Hoc Committees

    The ISDE Board of Directors may strike a task force to address a specific need in future. If you have expertise and interest in participating in a task force, let us know. Please note task forces and ad hoc committees typically have 5 or less members, are active for the period in which work is being done and will be disbanded upon conclusion of the initiative.

    Deadline: August 17, 2018

    Committee Sign-up Form

  • 28 Mar 2018 10:15 AM | Petra Feistl (Administrator)

    The 16th World Congress of the International Society for Diseases of the Esophagus, Vienna, Austria, 16/09/2018-19/09/2018 has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) with 16 European CME credits (ECMEC®s). Each medical specialist should claim only those hours of credit that he/she actually spent in the educational activity.

    Through an agreement between the Union Européenne des Médecins Spécialistes and the American Medical Association, physicians may convert EACCME® credits to an equivalent number of AMA PRA Category 1 CreditsTM. Information on the process to convert EACCME® credit to AMA credit can be found at www.ama-assn.org/education/earn-credit-participation-international-activities.

    Live educational activities, occurring outside of Canada, recognised by the UEMS-EACCME® for ECMEC®s are deemed to be Accredited Group Learning Activities (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.

  • 18 Feb 2018 6:25 AM | Petra Feistl (Administrator)

    There have been multiple new guidelines published for the diagnosis and management of eosinophilic esophagitis. This study by Vermeulen et al utilizes a population based, multicenter database to evaluate variations in the routine clinical practice of eosinophilic esophagitis. Despite the publications of several guidelines on this field, there continues to be significant practice variation.

    Read full abstract here

  • 13 Feb 2018 12:07 AM | Anonymous

    The International Society for Diseases of the Esophagus (ISDE) is pleased to announce that it is now accepting applications to host the ISDE 2022 World Congress.

    Click here for more information.

  • 31 Jan 2018 5:44 AM | Anonymous

    click on the picture below to watch the video.

  • 30 Jan 2018 6:27 AM | Petra Feistl (Administrator)

    Eosinophilic esophagitis continues to be increasingly recognized in the adult population.  However there remains little data regarding modifiable risk factors for this condition.  This study by Koutlas et al explores modifiable risk factors for eosinophilic esophagitis and their impact on disease manifestation and treatment.  

    Read full abstract here. 

  • 19 Dec 2017 4:37 AM | Anonymous

    click here to watch

  • 14 Dec 2017 4:31 PM | Petra Feistl (Administrator)

    The final Esophagram for 2017 is now available. Check it out here

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